Many of you know my younger daughter Elizabeth was once part of a set of twins. I lost one of the babies when my water broke on that sac at 10 weeks. It was a harrowing experience as I was on an airplane, only two hours into a 12-hour flight between Switzerland and the US.

After a tense week, we finally saw Elizabeth’s heart beat, and the other sac collapsed and got out of the way. I had no further complications to her pregnancy, other than the usual stuck position and required c-section.

A few days ago, after taking Elizabeth’s hair out of braids, she said, “I have angel hair!” So we took her picture holding a baby doll, which I later replaced with an image of herself as a baby.

There isn’t a sweeter guardian angel than Emma Hope, Elizabeth’s twin, and no better way to portray them than with a sister who once shared her womb.

This image is available at RedBubble for a keepsake card or a little poster for baby’s room, if you also have a guardian angel who will watch over you or your other children. It includes the very common phrase you will see repeatedly on grief sites, miscarriage tickers, and signatures, “Some people dream of angels…I held one in my arms.”

I was 20 weeks pregnant. I’d just taken a half day off at the high school where I taught. As I walked away, my newspaper staff was making a big chart on the board, and all my students were placing bets on whether I was having a boy or a girl. I was instructed to call the room after my sonogram, and they’d be there to answer and announce the winners. Many a Dr. Pepper was riding on the outcome.

My husband John came out of the coffee shop with bottled water just as they called us back. I commented as I stepped on the scale that lately I had felt skinnier, which I thought odd. I had been so concerned about it that a few days ago I’d gone to the nurse’s office at my school to be weighed.

“Nope, you’re growing plenty!” the nurse said, jotting down the number. I felt relieved and sat on the exam table. She pulled out a Doppler to get the baby’s heart rate and I automatically tensed. She had struggled with this at both my previous visits, so when she kept moving it around and around and found nothing, I didn’t worry as much as I might have.

“No worries,” she said. “We’ll see it during the sonogram.”

But when my doctor arrived seconds later, rather than after what was normally a lengthy wait, I knew something was wrong.

And when his first words were, “Try not to worry,” this set my pulse flying.

He immediately flipped on the machine beside us and laid the sonogram paddle to my exposed belly. He grimaced as he worked, and John held my hand tightly. I was already crying, but not really noticing as the moment was so intense, so long, so agonizingly slow.

Finally the doctor said, “There’s no heartbeat.”

The rest of the words sort of slurred in my mind. The baby was measuring out at 16 weeks, so had died shortly after the last visit. I remembered that sonogram so well, his heartbeat and the shifting of his shoulders making us realize he was alive, so alive, and going to be with us soon. Here is Casey at 16 weeks, the last time we saw him alive:

The rest of my story is well documented on the site. You can read it here.

So much has happened since then. My life has gone in many new directions. I quit teaching. I had surgery to fix my uterus. I had two lovely girls among complicated pregnancies where I lost other babies. John and I eventually separated.

But today is about little Casey, the reason this web site exists. It has been a long labor of love, at times causing me great anguish, but mostly being a source of strength and pride and comfort for both myself and the wonderful mothers who come here–this site takes 25,000 hits every day. 

I am doing a number of special things to commemorate this day.

Early this morning, I created a Facts about Miscarriage Facebook Group that women may join so that we can create a community of women united in our losses, to tell our stories, leave our pictures, and find each other. If you belong to Facebook, join the group and invite others. If you don’t belong to Facebook, take a look at it. It’s sort of a “myspace” for grownups, with fewer glitter graphics and pounding music, but all the utilities for sharing as much, or as little, of your life as you like. Feel free to friend me there.

I have also created a second miscarriage sympathy card. 

I enjoy making images that express how I feel about this baby I never got to see or hold. In this way, I get to enjoy my time with him, creating something new and lasting, and not just think of the past and what I lost.

I will return the site to its usual configuration in a day or so. If you would like to see the Common Questions list that usually fill this space on the site, here they are.

Deanna
Mother of
Casey Shay (Dec. 1997-April 1998 gestation)
Emily Faith (born April 1999)
Daniel (June-July 2001 gestation)
Elizabeth Grace (born May 2002)
and her twin Emma Hope (August-October 2001 gestation)

Tomorrow I’ll put the site back in its usual configuration, which is to place Frequently Asked Questions right here front and first-read, but for one more day we’ll think about what this candle lighting means and the day we got to stop and revisit our loss, spend time with our babies, and let the grief flow.

Today I got to tell Emily and Elizabeth about the babies who died in Mama’s tummy, and Emily started to understand. (Elizabeth still thought lighting the floating candles and setting them out in Town Lake was “great fun.”)

I’ll leave you with the image of us here in Austin, lighting our candles on this special day for our babies.

If I can’t make him a birthday cake, shop for that one awesome gift, take RSVPs for a laser tag party, or even…well, even kiss his big-boy head and embarrass him, at least I can do this.

This year marks really big changes in the look and feel of the site. I’ll be working very hard all day. I apologize if things get a little dusty and disorganized as you surf around!

If you want to see the old version of the site that you’ve been used to you can do so via this link.

Isn’t faith believing all powers can’t be seen?

Yesterday my almost-five-year-old (countdown to the big day–seven sleeps!) and I attended a baby shower for her preschool teacher.

One of the games involved each of the kids suggesting what Ms. Lindsay should name her baby boy.

The children mainly chose names of male classmates or dads or brothers. A few provided gigglers–Star, Sunshine, Happy Feet. One future class clown offered up “Poo.”

Elizabeth’s turn arrived. She seemed confused about this, and the teacher asked her if she needed more time. She shook her head, stood up, and said, “Matthew.”

My heart seized. She knew no Matthews. No cousins or classmates or friends. The only time she could have heard the name in her brief existence would be in Sunday School, where it would compete with the likes of Mark, Luke, and John.

But Matthew is a very important name to us. When we were told Emily was a boy at her sonogram, we chose Ryan Matthew as her name. Naturally she became Emily later when the high risk doctor told us–that’s an odd name for a girl!

When we got pregnant with Elizabeth, we decided we still liked Ryan Matthew but would prefer it flipped. So we called the baby Matthew early on when we referred to her in the womb, until her sonogram revealed she was also a girl.

But of course, Elizabeth was a twin. Her little sibling died and my water broke when I was only ten weeks pregnant. Elizabeth survived, although we had a week or two of uncertainty that the pregnancy would pull through.

We’ve named her twin Emma Hope, but after this baby shower, maybe we were wrong. Perhaps Elizabeth knows more than we do, and maybe, just maybe, some little presence whispered in her ear that morning, and for the first time, without even knowing it, she uttered a name she’d never before heard–her brother’s.

Many just want to share their story–to tell anyone and let it pour out. I always imagine it is like poison, or snake venom, and you simply have to purge it from your body in order to survive. I’ve heard most every situation that can be told after eight years, and I can handle anything laid in my inbox.

The beta readers who are going over Baby Dust right now also email me, mentioning moments in various characters that they feel reflect me. Stella, certainly, in her unabashed devotion to the group for a decade, often will say things I write in my emails to women–encouragement or concern or a reminder that the future will look very different that the landscape currently in view. I too once thought I would never have children, only loss after loss. I probably hit my lowest low when I was pregnant for the second time and my doctor called me to say my screenings with this new baby were abnormal.

“It will happen again,” I thought, my belly already fat enough that I had to lean forward to rest my head on the work desk. “It will happen over and over again until I can’t take it anymore.”

And that was when I formed a resolution I still repeat to women who feel their losses will recur and they can’t face it. “Can you make it through one more?” I ask them. “Not two more or five more or an endless stream of them. But just one more?”

When you say yes, you know you can make it through one more loss, you are ready to try again. Because your last loss may indeed have been your last loss.

Conceiving an idea is such great fun. There is so much joy in it, such hope. You can believe in something when the concept is broad and bright and entirely in the future. The execution of it is all together different. There are potholes, gaps, chasms, gorges between your dream and its fruition. You wonder if you fail, how many people will watch you go down.

Baby Dust is with six readers right now from various demographics. Women who’ve lost babies, women who haven’t. Doctors and editors and just writer friends who have no idea what darkness I’ve laid in their hands. I will listen to what they have to say about it, make my adjustments where need be.

For the people who read it who’ve never been through a miscarriage, I find they don’t believe some of it. “Of course you have to go to the hospital!” they say, and refuse to accept that this might not be the best course.

“No one would say that!” they exclaim when they see what comments are made to women fresh from their losses. They can’t imagine they might be told “It wasn’t really a baby anyway,” or “Just try again and you’ll be fine.” Or our favorite, “It was all in God’s plan.”

Initially I think–exactly, and that’s why you need to read this book. And learn. Then I think, what if they still don’t believe it? What if these scenarios do more harm than good? What if people think it’s gratuitous? Or disingenuous? Or manipulative? Or just bad?

Today I grapple with both anxiety and hope, much like we do when we learn we are pregnant again after a loss. Yes, it could turn terrible, and we might face awful devastation. But it could also be wonderful.

I take solace in Winston Churchill.

You will make all kinds of mistakes; but as long as you are generous and true and also fierce you cannot hurt the world or even seriously distress her.

I sure do hope he’s right.

On top was a pile of medical things, because I’ve been monitored for cervical cancer since last January. (Next biopsy–Feb. 12. Ick.)

I figured with everything going on, I’d better start a new folder for medical records, so I went to the file cabinet to see what already existed. Under medical, I found a packet rather unusually titled “old stuff.” So I pulled out this folder to see what might be inside.

A medical bill. Several, in fact. I scanned the list to see what they were for.

• Prenatal 1-3
• Antepartum Care
• Mycoplasma Culture
• Prolactin
• TSH

Right about here I realized what I was looking at but read on, much as someone might rubber-neck a car accident.

• Lupus Anticoagulant
• Prothrombine time
• Thromboplastin

I knew the date I would see. May 1998. These were the tests they ran to try and figure out why my baby had died. They didn’t figure it out then; I’d be pregnant with Emily before we understood the reason. If there should ever be a reason for something like that.

Strange I would come across this bill the same day I set Baby Dust aside, the first draft done, a whole trove of stories just like mine contained within its pages. Maybe Casey needed me to remember that they were little people, not just graphic incidents, or maybe he wanted to remind me why I was qualified to write it at all. Or maybe he just wanted to drop in, to show me he knew it was a big day, and to sprinkle me with luck as I start to send it out to agents.

Doesn’t matter. I can make it anything I want to be. And I choose to get dusted with hope.

Baby Dust is done. I wrote the last sentence two minutes ago.

I’ll update you all more on what is going to happen next later, but I’m sitting here bawling my eyes out and the ending worked out better than I thought it could, as if someone or something else told me exactly what to say, and how to say it.

Now, I’m going to go to bed and sleep.

I’ve added a new character, Constance, and I’ll see how she’ll work out. She’s married, has two kids, and works in a day care–a painful place after her miscarriage, especially when she feels some of the mothers mistreat their children. She comes home to find her husband fired from his job (again!) and insisting–no more babies. She can’t bear to end her reproductive years on a loss. So the conflict begins.

I hope to have a finished draft of the novel by Feb. 7.