Let’s talk about swine flu and miscarriage

December 9, 2009 at 10:55 am · Filed under Miscarriage

I both run and belong to several support groups on miscarriage all over the internet. I’ve seen a somewhat alarming trend on forums and blogs to make the recommendation that women NOT get the H1N1 vaccine, because some believe it causes miscarriage.

I have seen women very upset who miscarry on the day of their vaccine or shortly after. This does NOT mean the two things were connected. Thousands of women lose their babies every day. It’s sad and terrible, and I so wish it didn’t happen. It only makes sense that some of the women who lose their babies will have done something that day that will make it seem connected. Had sex. Worked out. Fallen down. Or gotten a vaccine or other medical procedure.

Right now there is one thing we do know: swine flu is unexpectedly more dangerous to pregnant women and their babies. They are dying. Not all of them, not even a lot of them, but more than was expected. So the flu itself is a risk.

• Are there little children in your house who could bring home swine flu?
• Are they in day care and more likely to get swine flu?
• How do you personally handle illness?
• Have you been prone to illness so far in the pregnancy, are you run down or fighting difficult symptoms?
• What sort of swine flu complications are popping up in your specific part of the world?
• And importantly, have you ever had a flu vaccine? Did it make you sick before?
• Do the benefits of the vaccine outweigh the risk?

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Dia de los Muertos

November 21, 2009 at 1:03 am · Filed under Miscarriage, Mothers

At the candle lighting last month, I had the pleasure of meeting Hannah Silk Kapasi, an artist local to Austin. She let me know that as part of the Mexic-Arte museum’s Dia de los Muertos exhibit, she would be putting together an altar for babies lost to miscarriage and stillbirth.

Hannah lost two babies to stillbirth in less than a year. I visited her altar at the exhibit, where she had tributes not only to her children, but also let visitors add to chains of bracelets with the names and dates of their own babies.

So many wonderful and proud mamas are doing great work to help get miscarriage out of our secret lives and into the open, where we can talk about it without discomfort.

See more pictures.

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Preparations for the Oct. 15 Candlelighting

October 14, 2009 at 9:44 am · Filed under Grief, Miscarriage, Remembrance Day

The big day is coming up. Pregnancy Loss Remembrance Day is Thursday, Oct. 15. Remember to light your candle from 7 p.m. to 8 p.m. your time to participate in the International Wave of Light.

I spent today making votives for the people coming to the one here in Austin, Texas. If you are hosting one, and would like to use this label for votives of your own, feel free to right-click and “Save picture as.” It is designed for standard address labels, Avery 8160. It does not have to be printed in color. It looks good in black and white too.

The Austin candle lighting will be at the lighted fountains in Butler Park, which is behind the Parmer Events Center (Long Center.) It’s easiest to park along the street on Riverside. We generally light them by the water’s edge, but you will find us by our candles.

Here are the final votives and how they turned out. You can get little candles like these for about $4 a dozen.

Blessings to all of you who will mark this day for your lost babies.

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Miracles after Miscarriage

August 28, 2009 at 11:33 pm · Filed under Miscarriage

It is always a joy to get an update from a once-grieving mom telling me she has had a baby since we last spoke. Often these notes come a year or more after her first frightened question on this site that I answered via email, and I am touched that these women took the time to track down the message I wrote them so long before.

I have had quite a few of these lately, and I’m talking about them because if you’re here right now, you’re probably either scared or grieving, worrying about a little blood you just found, or having some cramping, or waiting for test results and looking for information on the internet.

I’m here to tell you that even if the worst happens, an overwhelming majority of you (yes, YOU) will go on next time to have a healthy baby. You will never forget this one, and you will always carry a bit of grief in your heart over this loss. But you will go on, and you will find the courage to try again.

One thing about talking to women in the middle of a loss every day, as I do, is that you learn to appreciate the happy endings. So many of us have a very difficult journey into motherhood, full of despair we never knew we’d feel in connection with what was supposed to be the most joyous period of our lives.

But we do find our way. For a few, it might be adoption or recurring miscarriage treatments. But for most of us, we’ll perservere, and that baby we long for will come. And when it happens to you, I’m delighted to hear about it.

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Winter Blues and Virtual Hugs

January 14, 2009 at 11:18 am · Filed under About Deanna's Book, Miscarriage

So many of you are having a hard time.

I’ve had a four-fold increase in direct emails since the new year began. Heartbreaking stories, difficult moments. Many of you feel so very alone.

I’ve heard women say things that make me so sad that in the ten years since this site began, so little has changed in how we feel about revealing the extent of our grief:

• On Facebook, a woman wrote me thanking me for the private support, but she couldn’t join the Facts about Miscarriage support group because she didn’t want any of her Facebook friends to know she’d lost a baby. (Note that you have to be a member of Facebook–which is free–to see our Facebook group.)
• Via email, another woman felt uncomfortable sharing the name of her baby, as she thought others would think it silly to name her lost child.
• And everywhere, friends tell me how they keep their pregnancies to themselves for months, “just in case.” They don’t want others to know about the baby should they have a miscarriage.

I understand all this. I’ve been in these places, felt these things. But I want, really really want, a world where life CAN be celebrated from the moment it is known to exist. That we CAN tell our friends and family about this devastating loss, and feel loved and supported as we would in any death in the family. That we would NEVER feel guilty or as though we did something wrong, that the miscarriage was our fault.

This year I’m going to work even harder to make this happen. I’m applying for fellowships, trying to find time (and grant money to support me) to finish Baby Dust. I want to get this so visible, so public, so open, that we can change this feeling that we should hide what has happened.

We can’t change the miscarriage rate. This year, like most years, 6 million women (in the US) will get pregnant and almost 1 million of them will lose her baby. We are probably one of the single largest groups that suffers so silently.

I know from your emails, your notes, and your blog posts that you are having a hard time. 2009 isn’t starting off anything like you hoped. But this is a year we will get stronger. We’ll make something out of what has happened to us. And we’ll change things, because our babies, those beautiful little life-lights, live through us.

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