Let’s talk about swine flu and miscarriage

I both run and belong to several support groups on miscarriage all over the internet. I’ve seen a somewhat alarming trend on forums and blogs to make the recommendation that women NOT get the H1N1 vaccine, because some believe it causes miscarriage.

I have seen women very upset who miscarry on the day of their vaccine or shortly after. This does NOT mean the two things were connected. Thousands of women lose their babies every day. It’s sad and terrible, and I so wish it didn’t happen. It only makes sense that some of the women who lose their babies will have done something that day that will make it seem connected. Had sex. Worked out. Fallen down. Or gotten a vaccine or other medical procedure.

Right now there is one thing we do know: swine flu is unexpectedly more dangerous to pregnant women and their babies. They are dying. Not all of them, not even a lot of them, but more than was expected. So the flu itself is a risk.

But we have no medically proven risk with the vaccine. Doctors insist it is safe. Maybe they are wrong, but a miscarriage after a vaccine cannot be conclusively connected. The vast majority of miscarriages are genetic.
 
It IS a big decision to get a vaccine, to knowingly put anything in your body when you are pregnant. I think the risk is too individual to be easily advised by someone who doesn’t know your situation. Some things to ask yourself: 
  • Are there little children in your house who could bring home swine flu?
  • Are they in day care and more likely to get swine flu?
  • How do you personally handle illness?
  • Have you been prone to illness so far in the pregnancy, are you run down or fighting difficult symptoms?
  • What sort of swine flu complications are popping up in your specific part of the world?
  • And importantly, have you ever had a flu vaccine? Did it make you sick before?
  • Do the benefits of the vaccine outweigh the risk?
It may only be your own doctor who can advise you on this. Please, before listening to horror stories on the internet, talk to the person who knows you, who knows the level of risk in your community, and can help you weigh the benefits of the vaccine versus going without–your doctor.
 
When a miscarriage happens, we want to find somone or something to blame. This is very natural and happens to all of us. But we definitely don’t act based on something that might not apply to us, so I urge you to take this decision seriously before letting blog posts (even mine) convince you how to react on this vaccine issue, or to believe a conspiracy, or a cover-up, that might not be a sound part of your choice on the vaccine.

Dia de los Muertos

art-012At the candle lighting last month, I had the pleasure of meeting Hannah Silk Kapasi, an artist local to Austin. She let me know that as part of the Mexic-Arte museum’s Dia de los Muertos exhibit, she would be putting together an altar for babies lost to miscarriage and stillbirth.

Hannah lost two babies to stillbirth in less than a year. I visited her altar at the exhibit, where she had tributes not only to her children, but also let visitors add to chains of bracelets with the names and dates of their own babies.

art-011So many wonderful and proud mamas are doing great work to help get miscarriage out of our secret lives and into the open, where we can talk about it without discomfort.

See more pictures.

Austin Candlelighting 2009

We had a lovely evening in Butler Park here in Austin for our public candlelighting for Pregnancy and Infant Loss Remembrance Day.

27 people from 11 families participated. The wind kept blowing our candles out at first, but we found some protection by the reeds along the shore and finally were able to keep them lit.

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Preparations for the Oct. 15 Candlelighting

The big day is coming up. Pregnancy Loss Remembrance Day is Thursday, Oct. 15. Remember to light your candle from 7 p.m. to 8 p.m. your time to participate in the International Wave of Light.

I spent today making votives for the people coming to the one here in Austin, Texas. If you are hosting one, and would like to use this label for votives of your own, feel free to right-click and “Save picture as.” It is designed for standard address labels, Avery 8160. It does not have to be printed in color. It looks good in black and white too.

The Austin candle lighting will be at the lighted fountains in Butler Park, which is behind the Parmer Events Center (Long Center.) It’s easiest to park along the street on Riverside. We generally light them by the water’s edge, but you will find us by our candles.

Here are the final votives and how they turned out. You can get little candles like these for about $4 a dozen.

Blessings to all of you who will mark this day for your lost babies.

October is an important month for our babies

I want to remind all of you that October is Pregnancy Loss Awareness Month. Robyn Bear, founder of the organization that got the designation of this month in all 50 states, has a listing of all the public walks and candle lightings that will be going on. You can see those on her walk page. If you don’t have one near you, start one!

If you are looking for items for your babies, she has lots of lovely jewelry, stepping stones, boxes, and many other memorial pieces. You can see those at her store. She has beautiful pink and blue awareness ribbon car magnets for just $4 to help you spread the word.

And my own memorial book is safely at the printer! In the Company of Angels is done and many of you proud mamas are already preordering your copies. They should be here in a few weeks. I can’t WAIT to fill one out for Casey Shay! You can find out about ordering it at the publishing company web site.

It’s been an amazing month! The video I made (see it in the upper right corner of this screen) has gotten thousands of views. People are starting to understand how important our babies are. They are not to be forgotten, but real people who made a huge impact on our lives.

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